Be grateful for what you’re doing in this very moment. I never thought this would be what my moment would look like as the mother of a 9-year-old. This weekly organizer holds ONE DAY of pills for when we are at home. In the hospital, a lot of these drugs are pushed through his catheter along with his chemo drugs. I finally had to break down and make a chart because I couldn’t keep the growing list of meds straight.
Today was disappointing to say the least. Our prayer for a miracle wasn’t answered. We don’t know a lot as of now, but Matt and I didn’t need a medical degree to see the bright spots on the bone scan don’t appear to have changed.
The good news is that the CT didn’t find anything in his lungs. We will find out much more in the next couple of days as tomorrow’s tests are more telling – MRI and PET scan. But, we already have a surgery date of next Wednesday, May 11. Unless the scans tomorrow are surprising, the plan is to resect the tibia and create a new one from his fibula as well as biopsy and scrape out the tumors on his femur all in the same day. He will be non weight-bearing and on crutches again with more surgeries to follow after more chemo. He will recover from surgery on the peds floor of the main hospital this time and start his next round of chemo 2-3 days after surgery.
Despite the fact that he has the flu, he’s had a pretty good day and enjoyed his time outside in the beautiful weather. We got to have supper as a family in our own home. Thank you for praying. Please continue. #PrayforMason